Andrew "Drew" Duszynski
Drew is the son of Don Duszynski and Pam Schulz of Plainfield, IL. Born on January 21, 2010 just a few minutes before twin sister Abby, he was diagnosed with a rare kidney disease and liver disorder when he was three weeks old.
Drew has Autosomal Recessive Polycystic Kidney Disease / Congenital Hepatic Fibrosis. (ARPKD / CHF). The great news is that he has already beaten the odds as a majority of babies with this condition do not survive infancy. Although he's done well, he requires multiple medications to control his high blood pressure, liver function, anemia, vitamin deficiencies, and potassium excess. His growth is a constant struggle made even harder by his restricted diet. Some of the side effects of the many medications he takes and his renal failure make it hard for him to keep up with his peers. Despite his condition and all his daily challenges, Drew is just a normal little boy – bright eyed, smart, sweet, playful, funny, inquisitive, full of life, and a true best friend and constant companion to Abby.
The not so great news is there is no cure today. The only treatment is a kidney transplant – and possibly even a liver transplant as well. Once again, Drew has exceeded all expectations by making it to his FIFTH BIRTHDAY before his kidney function has declined to the point where a transplant had to take place.
On June 08, 2015 Drew had both of his oversized, diseased kidneys removed and after a month in the hospital he returned home to Plainfield. He receives nightly dialysis (10 hours) to sustain him until a new kidney is located and transplanted.
Recently a healthy adult donor who is a solid match stepped forward and is willing to donate a kidney to Drew. While Don & Pam are working through the considerable details associated with such a significant undertaking, we are thrilled that it appears Drew will receive the miracle everyone has been hoping would happen.
As plans get finalized, we will continue to provide updates.
HOW YOU CAN HELP
With the total cost of a transplant often exceeding $500,000, transplant patient’s families are unable to shoulder the financial burden of such a procedure. While insurance will cover a great deal of the costs for Drew’s kidney transplant, the expected out-of-pocket costs are estimated to be in excess of $50,000.
The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-needy patients. COTA helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA does not charge for its services and does not take a percentage of funds raised.
Please consider making a donation to COTA in honor of Drew. All donations are tax-deductible and all monetary gifts of $75.00 or more will receive a statement of giving from COTA.